I have Sarcoidosis and MS or Sarcoid and Sarcoid? hmmm

Shorter version of my LJ post =
Went to Neurologist today.  Spent 7 hours at UCLA.
Tremor in left hand.
Balance is off.
Strength is ok.
Reactions to nerve / reflex stuff = good then bad then good etc.
5 vials of blood drawn.
Chest x-ray taken.
They're not sure why I was diagnosed with MS when I have a biopsy proving pulmonary Sarcoidosis. 
NeuroSarcoid can be almost impossible to diagnose and can mimic MS almost to a tee. 
They want me to have an MRI (full spine this time instead of head and c-spine I used to have).
Then another visit with Neuro.
Then probably a spinal tap.
Luckily arranging most of this will probably take months.  7 hours in a hospital = headache = I already need a break.
I am starting almost from scratch after years of living with Sarcoid and MS diagnosis, years of shots, years of meds, etc etc etc. 
I'm starting over except we KNOW I have sarcoid and we know the brain and spine damage is either MS or Sarcoid or both.