136 posts tagged “health”
I'm thankful for my family, Brian, my kitties, friends (yes, including those of you I only know from here), having a decent place to live, books.
I'm not thankful for my current state of dizziness and this darned cold that started last night. How rude of it. I have to go see the dentist Saturday. Between my semi-pema dizziness and a cold then the dentist, could I be more tortured? Really. I already know the news on Saturday will be bad, though Brian thinks I'm preparing for worse than it really is. Either way, going to be tortured while dizzy and ill is just blech.
Brian didn't want his traditional Thanksgiving pizza. So he's off in search of burgers for him (or just chili cheese fries for me -- I can't stand the idea of a burger right now, too ill) or if Fat Burger is closed then a chicken sandwich and fruit from Norm's for me. We're very *cough* traditional.
Actual conversation we just had:
Brian: You know I love you and shit
Me: You love shit?
Brian: And you.
*insert my raised eyebrow wtf? look here*
Brian: Hey you got top billing.
*insert same look here again*
Brian: You know you give me that look a lot when I speak.
Indeed I do.
Random thoughts:
In this OMFG Obama is a 'Kenyan Socialist Nazi Terrorist-loving threat to freedom' world, 1 Republican voting on anything that Democrats support is bi-partisan. So The House did indeed pass a bi-partisan health care bill. I'm still against mandates. But it's nice to see the parties finally working together. Now we know who will be the next person to be kicked out of the big tent that is the Republican party. ;)
The daughter of one of the victims of Fort Hood is calling for everyone to not blame Muslims. She says, basically, that this was just a man with issues. Not a group of men. Not a Muslim. But a man. Bravo to her for being one of the few voices of reason. A victim. One of the only people with true reason to be angry. And she is wise enough to see things for what they are while others are not, even through her own pain.
My CC is back! I missed him. This will mean nothing to any of you. I'm just glad. I've not talked to him in ages.
11,551 words so far. I'm almost caught up to where I want to be, even if it means lots of re-writes later. It could be worse. Way worse. Could be way way better too. Poor Ivel does not like having his world rushed.
I feel like hell. Didn't go pick up meds today. Put it off til tomorrow. Woke up feeling like I had been hit by a truck. Muscle aches etc. Brian said he didn't do it. Head is all stuffy. Thought I had a fever but then it went away if I did. I need sleep. zzzzzzzz.
NaNoWriMo update: 10,124 words so far. I skipped a day, or was it two? Plus I did some minor tweaking. No, no major editing -- I know I'm still supposed to have crap. Just a little tweaking as I had screwed up a bit so bad, I had to fix it enough to be able to keep writing the crap even ;) I'm sure when I finish this my main character will be happy to know I'll re-write his world -- probably next year. After I finish holiday stuff anyway.
Me update: I'm almost expecting to experience Night Twitches soon, aka Myoclonic Jerks. I don't usually attempt to predict these as they happen so rarely. But, I've actually had something similar happen a few times while awake the last two days now. So, I'd say it's a good bet they're coming for me -- soon. I'm overdue for them anyway. They suck. But I've not had them much since on the higher doses of anti-seizure pills either. So, maybe I am wrong. Maybe the similar things I experienced while awake made up for the falling asleep ones I've not had happen in ages. *nods* Speaking of sleep. I feel so sleepy that I could fall asleep right here, right n
Pilots --
NBC is reporting that those pilots were out of touch for what an hour? because they were using the bathroom and breaking out their laptops for mundane work tasks like looking at work schedules. Uhh... That must have been a hell of a bathroom break and on hell of a complicated work schedule to go over. You're PILOTS. I know that traffic isn't as bad as say LA freeways. But you're operating some sort of a vehicle. You don't friggin have BOTH pilots off peeing and playing solitaire at the same time for an HOUR.
Reid grew a pair?
Senator Reid just announced that there will be a Public Option in his health care bill, with an Opt Out option for states.
October is almost over -
I'm still convinced I'll take part in NaNoWriMo, despite the fact that I've never written a story (maybe in like 1st grade -- back when they forced you to and called it homework). I've been trying to at least think about it. Surely it's not cheating to think ahead. And so far I've come out with a very vague concept -- the three main characters, the general idea of what the story will be, and that's it. I kind of hoped I'd figure out how I'd want to end it as that's actually major I think for what I do with the middle -- but it's not coming to me yet. Hrmph. If you're playing along and are going to give it a go, feel free to add me (DelusionalAngel) as a writing buddy so I can cry over how much faster you write than I do ;) I MIGHT even let a few trusted read what I write if they ask -- though as I said, I've never written a story and expect suckage to occur.
Home
Lister is having surgery tomorrow. His ear was swollen with blood this weekend. They decided he had earmites and shook his head so violently that he burst a blood vessel or something and would be fine -- except he was left with an ear that looks more like a puppy ear than a kitty ear, flopped over. They said to watch it. It keeps filling with blood. So now they they think he has an artery that is open and he needs kitty surgery basically. They have to go in and stitch it up. He may or may not end up left with the puppy floppy ear - the vet has had a kitty with this and it can be permanent. It's both cute and sad when he looks up at you with that ear flopped over. He's not in pain though, so that's good.
They're coming to my apartment in a few hours to green the place up. Well, these apartments are older. They want to upgrade the lighting fixtures and/or bulbs to be energy efficient -- Except they said if you put in newer fixtures those are exempt. Well the people who lived here before us put in the very fixtures that Brian LOVED from IKEA. So they're gonna let us keep those and only change the bathroom stuff (which I suspect means just the bulbs, maybe, not sure -- they are enclosed though and technically not sure you're supposed to use those energy efficient bulbs in those *edit* apparently the way to upgrade fixtures that are enclosed in the ceiling IS to just add new bulbs) and outside stuff. I'm surprised they're changing so much. I thought that it was as early as next year when we could have to move out, since they're gonna tear these down to build newer fancier "we can charge a fortune for waterfront Marina apartments" even though the newer expensive ones next door are all but empty. We're thinking that they're waiting another year to start since they did say 1-5 years and the economy here still sucks so bad, etc.
Guardian Life Insurance Co., can kiss my ass, as can the others since they tend to think the same way. I am NOT a dog because I have MS. FUCK ALL OF YOU. Turns out I'm probably better off not having insurance and real care, you'd be sitting around calling me a dog trying to put me to sleep, apparently. And reform = MAKING me buy your product? WTF? *edited to add -- since this is a story about MD - I did search to be sure TYT didn't confuse MS with MD, as people often do. Nope they did mention MS and other things*
So MS is in the news thanks to swine flu and our friends in Florida. Seems voting is not the only thing they have wrong. Health care too. They're singling out MS in regards to how to ration health care if a swine flu pandemic hits. *blinks* Idiots.
Apparently they're preparing for their hospitals being too full and they want to know who they should deny treatments to. #1 on their list is apparently incurable cancer and #2 appears to be end stage Multiple Sclerosis. It's all over the news. Do they not educate people in Florida? Not even their doctors? Death by MS is so rare. In fact we don't really DIE FROM MS so much as... okay -- it's an auto-immune disease. The brain and spine control every organ, in MS they get scarred up and so everything goes wonky. We can have all sorts of issues. If we get infections or whatever it can be harder to fight. Our bodies often fight things that they should not fight and then hey when it comes time to fight what they should, well, it can be a bitch.
I'd never even heard the term end stage Multiple Sclerosis before today. BTW - people learn to enunciate. It sounds like half of them are saying IN stage and the first story that I saw, it wasn't clear what they were talking about so I was like "What in the hell is IN stage MS?" When they finally got to the talk of people who are dying of cancer, etc I went "Oooh, END stage, duh." MS is a horrible disease, it sucks. It makes my life a bitch. It's nothing like what people dying of cancer go through though, I'm sure. So few people die of it. Not enough to turn it into a national story about how there's enough of us dying that hey if there's a pandemic yeah between cancer patients and people dying of MS -- if we leave them out of the ERs we'll have room. Such bullshit. Now if they said something like we have a lot of MS patients who come to our ERs for IV treatments and during the swine flu season we would like their neurologists to keep them out -- THAT I could buy.
Yes MS is a horrific disease and yes right now I get so dizzy I can't stand for long, I whine, I feel like hell, I get tired, I cannot walk for long, etc etc. BUT, I'm not dying. I probably won't die of it. To even hint that "end stage Multiple Sclerosis" is some sort of a major issue, big enough that if you have a pandemic it's #2 behind cancer in how to free up hospital beds... ?? Grrrrrrrrrrrrrrr. Yes, a few will die from complications related to having MS but MS is NOTHING like cancer. There's really NO such thing as terminal MS. If something happens and you get sick, having a screwed up immune system from something like MS and a brain and spine scarred to hell and back - yes, that might speed up your death. MS is NOT really terminal itself anymore. Maybe in the way way past. Florida -- get your heads out of your asses and educate yourselves. I could probably name a dozen illnesses myself where the patients would be at bigger risk being in the hospital during a swine flu pandemic and/or who would bring you more patients taking up more beds than terminal MS patients.
So insurance companies released a report saying that if you reform health care they're going to screw a lot of people and do things like jack up premiums -- by a lot. If you don't reform health care they've already proven that they will screw people by doing things like jacking up premiums -- by a lot. Good luck with that. I've seen numerous people who claimed that they on the fence about public option saying you're pushing them to consider supported it now. Good job. Admitting your whole goal is to screw the consumer is obviously the way to go.
Apparently they didn't think it through very well. Their real goal was to push for a stronger mandate. The report was supposed to show that the the personal mandate is too weak. You have to force us ALL to buy their product or well hey if they don't have each and every American paying for their product why in the hell will they lower costs? Nevermind the fact that they already have a pretty sweet deal in the current joke of a bill that they all but helped write. Maybe it's some kind of a joke. If we pretend we're against it Americans will support it. Either way, it's a horrible PR move.
We're going to screw you if you reform us, we're going to screw you if you don't. I've never seen a better invite for a "government takeover of healthcare" as they like to call it. Obviously they're flat out telling us that they're going to do whatever they want no matter what, with or without new reforms. Health isn't something I like companies screwing with. I've been there. I've had mine screwed with. It's not a game.
It seems that I have a fan stalker from Vox. I'm getting anonymous comments from someone in Florida on the LJ versions of my posts. They made it clear they're coming from Vox. Since I've only banned one person from Vox who isn't a spammer, I can assume who it is. My mom already commented on their spelling. Another commented on how psycho they were. Fun fun. I attract loons. Go me.
I've forgotten to mention that Brian's dad is coming to visit for a few days. It'll be a fairly quick visit. Mostly time for them to spend a little together, though there is a mention of a Disney trip but my health has been so bad that we're not sure that will happen and if it does we're not sure that I'll go. Brian has promised that if I can't go, we'll go later when I'm doing better. Brian was thinking of trying to find a shooting range for boy time since his dad likes guns. Brian doesn't like guns but he figured shooting at targets would be okay.
In the health department it's a mixed bag, it's no secret that this has been the worst year since the symptoms started. No surprise. The MRI this year showed no good. We knew I wouldn't tolerate the new medicine well. I am tolerating it better than Avonex but the last few months have been rough. Not the chills and total flu stuff that Avonex caused, but a lot of dizziness and weakness. That could be the MS since I was already starting to be tired and have dizzy spells. But it did get worse after the medicine. It has been tough to go anywhere. I can't stand up, walk, etc for more than 15 or 20 minutes before I feel really weak and dizzy. Sometimes I can't even been out in the car for that long before it starts in, so we go out thinking I'm doing as well as I can be, and turn around before we can really get stuff done. Yesterday was the best in weeks though. I actually got some errands and shopping done, so that felt good. Was going to go on to try groceries too but then the dizziness kicked in. So we picked up dinner. Came home and ate. After re-energizing I was able to redo some of my shelves and clean for 30 minutes or so. Most productive day in so long.
Today I cleaned a lot more. I even cleaned Brian's mail pile of doom. As in he looks at his mail and throws it down. Some was behind the couch. I dug it all out. He even had a missing check that I found. It took a good 30 minutes between digging out the mail and sorting what was junk and what was definitely to be saved and what was questionable (maybe junk, maybe not so stick it in the bag for him to figure out). He's all "Wow it looks neat there now" (by the front door). Yeah, I'd like to keep it that way. I put my mail in a bag to shred when we replace our old broken shredder. Silly man. 9 months of mail doesn't belong next to the couch with the cats knocking it behind the couch.
Brian recently finished a movie, so this week he should get home early. Tomorrow we'll go to Target to buy a blanket for his dad to use while here. When his dad leaves, I'll take it over since Brian hogs the Ikea comforter. And my pillows! He doesn't even like pillows! Yet we bought him pillows since he kept stealing mine. He still steals mine. THIEF!
So yeah the health has been bad bad bad. But the last day or two, it's been much better than it has been, so I'm hopeful. I'm not sure it's improving enough to do Disney by the end of the week :( But, still, hopeful. Maybe I can by the end of the year.
I think that she claimed that Tort Reform and eating wrong is why I have MS / Sarcoid and no health insurance. She's a fucking moron.
My diet is vegetarian except on the weekends. And tort reform isn't gonna lower insurance costs for people like me. I've worked in a hospital, I guarantee you I've worked with people who are true patient advocates and she's nothing like them.
Dylan Ratigan is one of the coolest people on tv lately. He's one of the only people taking on business and politicians and not taking any crap.
Saturday:
Brian wanted to go B&N yesterday, duh like I'm gonna pass that up. I was feeling really bad all weekend though so I almost didn't go. Somehow I made it through. Got Stardust
Sunday:
I had my mystery rash show up again this weekend, Brian saw it again. Hadn't eaten or drank anything at all yet. Couldn't get a picture because my phone decided to be defective and not turn on and not reboot, etc. We finally had to just take the battery off. Stupid thing. By the time I had a working phone and camera again the rash was gone. Just red looked more like it was under my skin than on top of it. Not really bumpy or anything. And since I hadn't anything to eat or drink erm, no clue what could have caused it. *shrug* But it was up and down most of the bottom half of my arm from my wrist to my elbow on the underside of my arm though. Weird.
Beyond that, too tired and sick to do much so just watched Desperate Housewives premiere and read.
WTF files:
This may read like spam, but it is actually a reply that I received from the CS department of a credit card company that I have an account with. I had sent them an e-mail from their site asking them why they send me ads, coupons, etc but not bills since I moved in February. Turns out there was some misunderstanding. One piece of mail got returned for some reason, while others did not. We've had that issue a few times here. I think somehow people screw up the apartment # or something.
Thank you for visiting the **** website. In reviewing your account I am showing that we received return mail. Since we through we did not have a valid address on file for you a return mail status was placed on the acct cause no statement to be sent out tou you. I apologize for the inconvenience the return mail hold code have been remove.
The only excuses I can come up with for such poor English in business communications -
1. They outsource their customer service to another country
2. Their employee was clearly drunk or hungover
3. Text speak has caught up with us and now no one cares -- so that looks good.
4. Lack of funding for public schools has caught up with us -- so that looks good.
5. My own crappy English skills are even worse than I thought and that is actually brilliant
