If you didn't see the 60 Minutes story on Remote Area Medical , you should go check it out here.  And then if you have a few bucks to spare, donate to them.  It's nice to see people providing no cost medical care to those who need it, at least someone out there realizes there IS a freaking problem in this country (and others) and is trying to help.

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Ok real non political, non rant, non art, etc update.

I'm alive.  Still recovering from that heat spell we had.  No energy.  Try to draw, etc but just no brain power.  After apartment shaking skipping cd on mega loud yesterday I got a headache like I've not had in a year or so and all of those vibrations and that level of head pain also seemed to trigger a tingle attack unlike any I've had recently.  So health could be better. 

Made it to Wall-E tonight and briefly met a few of Brian's co-workers as we left (they were already seated and not near us when we got there) and they weren't ones he usually talks about.  Then went to get f00d.  He has another co-worker event tomorrow but it was somewhere that requires reservations and with the exhaustion, MS'y, tingly stuff Brian just told them not to include one for me, which was a wise move.  But of course the co-workers he works closest with weren't at the theater tonight, so Brian told one of the others who was there they'd have to be his witness that he DID show up with me and does have a gf :P  His co-worker, of course, said it'd be something more like "Nah Brian was there alone, there was no girl with him' heh.

As for Wall-E, cute movie.. apparently it's weird that I am more excited about Batman than it and that Brian is more excited about it than Batman.  Sexism!  But Wall-E was cute.  MUCH better than Indiana Jones was.  Of the summer movies I've seen Iron Man, Indy, and Wall-e.  Wall-E's probably on top followed by Iron Man and dead last Indy and expect this list to be moved around once I see Batman and I might also see Hancock... thinking about Hellboy 2 too, but haven't seen 1 yet.

Hmm that's it.  Art = still working on several digital paintings but have no brain power or energy so getting nothing done on them to speak of.  MS'y stuff not horrrriffic but not good either so am lazy and tingly and just like I have no energy.  Umm hmm yeah.  Brian has the next week off and I forget to look up stuff to do, oops.  Told you no brain power... MS is so fun, especially in summer.  I'm repeating myself.   zzzzzzzz

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I am pretty sure I moved to hell overnight...
It feels like it's 101000088987398 degrees and I've now, for the first time this year had to empty our portable AC... and not once but three times in less than 6 hours.

Hello Summer, go away.  I mean really compared to a lot of the country we have nice weather year round, so no longer like Summer.  Like rest of the year.  Summer can bite me.  Summer = extra active brain aliens. 

Still waiting for the last charge to clear so I can cancel my card, I am pretty sure it will happen tomorrow. 

Cold or allergies.  Fun.

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So our 2fer ticket was going to expire during the week, which meant go to Disney CA Adventure this weekend or let it go to waste.  This kind of felt like a waste either way because well... if you haven't been there CA adventure SUCKS.  Despite having the Disney name it's really just a fair.  There's like one ride we like, some over hyped rides, a coaster I haven't braved due to my MS / messed up senses, a Muppet show I LOVE that's hidden in a corner that never seems popular but if you were raised on Muppets like I was well it rocks, and... that's it really.  The new Toy Story ride we were excited about isn't opening until the 17th but we decided to go anyway.  Good thing we did, they had a sneak preview unannounced before tomorrow's media day and Tuesday's official opening of the ride!  The line said 50 minute wait time but between the line and the ride itself we were in and out in about 30.  I liked it so much better than the version at Disneyland, it rocked. 

BUT.. there was some bad at the park too :(  The car ride that makes Brian a bit ill, I had put my purse in the mesh bag they give you for bags so they don't fall out (there's lots of hats etc down in the bottom of the ride).  We get out of the ride, walk down the stairs, and I notice the zipper on my purse is just shattered and my Go Forward Superman / Christopher Reeve tag is gone :(  Brian went up and that car was just coming back around and the tag was still in the mesh bag so we saved that, YaY!  But the zipper on my purse is toasted.  Not sure how it got caught on a mesh bag and torn apart when it was a metal piece that's held up for years and I didn't notice.  Meh.  So we joked that Ed Norton owes me a latte and Disney owes me a purse.

Also... WTF makes a building FIREPROOF?  Isn't that like saying HEY ARSONISTS TRY US?  Brian thinks it's kind of like the Titanic and their we're the unsinkable ship line.  Sadly I saw it on the freeway when we were going 60 mph and I only had my phone can so I stole a pic from Google.  I mean, what?  Because the building looks as old as LA and is still standing it's fireproof?

Young Apartments

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"They" and they being all of the political experts are saying that Hillary will concede to Obama tonight...

Still not doing great but better than yesterday which was such a big woah that I passed out between the time Brian went to shower and the time he got out to leave for work.  Woke up not feeling great but not feeling like the brain aliens had mutated into something new either.

How do map sites like Google give estimates for travel time in "traffic"?  You know, the 10 minutes... up to 30 in traffic... Really?  Is there some complex secret formula for that?  Because I'm pretty sure traffic travel times can't be guessed especially in cities like LA.

Needle clipper arrived, my Copaxone needles fit, w00t!  Now just need to double check to be sure I can legally throw the rest away... pretty sure I can as no blood is in it, and all of the medicine is out of it.  Without a needle attached I'm pretty sure it's no longer biohazard material in Cali.

ouchie... can't type more.  zzz time...

*edit* clinton camp says she's won't.... she should... hrmph...
zzzzz

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I kept smelling just random smells for no flipping reason, some ok, some good, some stinky.  Didn't matter what room I was in.  Random.  They come and go.  I get up, look around trying to find if something around could be causing them.  Nothing.  Eventually whatever I am smelling goes away.  Later again more smells.  Then I start feeling sick to my stomach.  Feeling dizzy.  Giant flash of bright light in vision that then went away, much like the tracers "Aura" for migraines I get but not moving and just one giant one that flashed and went away.  Nerves in arms all tingly.   Which makes me think it's just a combination of the MS and possibly a mutant migraine trying to work together... whatever, I feel like total crap and shouldn't whine...

Ted Kennedy is having brain surgery today.  Somehow my broken brain seems silly to whine about but I just did anyway, so ha because I do feel horrific.  Gonna go curl up in bed with puke bowl nearby just in case...  think I'll stop being paranoid about smells though, I clearly am just going crazy and am not going to find the causes as there is none.  A new MS Brain alien? A cold? WTF? I wish I knew but it hit suddenly and everything online says stuff like sinus infections -- 90% sure not that I'm a pro at those, seizures, brain stuff (MS?), I dunno.... tired.. too many confusing could be this or that pages...

Sleep will probably fix it! zzzzzzzzz, I hope.

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And you take the bad...

Bad = cat puking all over your blanket at almost 11 at night when the washer here is broken so rinsing it out in say the tub and letting it dry in the nice cali sun isn't possible.  Spot cleaned it best we could.  Just, eww.

Also Jury Duty summons for the middle of July, hello... Nope.  My MS has had my sleep "schedule" and pain and etc messed up for years.  I liked jury duty last time I did it but don't think I can handle it now.  So I called to postpone it long enough to get my new neuro to fill out the form getting me out of it, hopefully.  If not at least it's postpones until Winter and not the heat of summer when it's all even worse symptom wise.

Shot didn't go so well tonight, not truly bad, but one of the rare times when autoject is blech.  I do NOT want to use the needle alone and usually autoject is fast.  There are rare days like say twice a year when I must pick a spot it doesn't like and it seems to take 20 minutes for the shot to complete.  I said seems... it's really like a minute... but it feel like forever when trying to hold the autoject there waiting and it hurts.

Brain aliens, mostly pain alien have been active over a month now and don't seem to want to go away.  They start to then BAM hit me ten times hard, get better, BAM... it sucks.  But I'm managing to get some art ideas down and working on some, somehow. 

Overall more bad than good... but trying to get some good in today, yay art.

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My mommy posted in her LJ and her VOX...
Her blood work is in and it seems to answer why her MRI was abnormal.  And it's not MS nor is it Sarcoidosis! 

It's Pernicious Anemia so she gets to get B-12 injections.  Still gotta say that sounds better than MS or Sarcoid so I'm calling this good news :)

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Politics:
Hmm Insomnia posted yet another interesting post, I'll just let you read his post here instead of ranting about it myself as he rants far better than I do ;)   But basically, it seems that voters in predominately black areas of NC received calls explaining they only needed to sign and return their voter packets -- WITHOUT VOTING, to be eligible to vote.  In other words a. they clearly think these people are stupid and b. this woman's organization targeted mostly black voters trying to suppress their votes.  I'm a news junkie and haven't seen it on mainstream national news yet so, errm... wtf?

In other political news, mom once wanted to nearly disown me because I liked the Clintons.   That was before Hillary ran in this election.  Hillary has now convinced me that she's a closeted Republican so I no longer support her and with Edwards gone I support Obama.  My sister has taken up my to be disowned spot by announcing she'll be voting for Hillary in the Oregon Primary, heh.

Dutch:
I have picked up my Dutch books only to, as predicted, read the first few chapters, again!  BUT, I also have Pimsleur beginner Dutch CDs and have listened to lessons 1-6 (of 10 lessons I think) during the last few days.  So far, since it is beginner stuff, it's a lot of hello, how are you types of things.  Which is good, I know to spell those things I'm hearing.  Lesson 6 has moved onto the would you like something to drink types of things.  Eeek.  I always said the Dutch letter g scared me, and it does.  But hearing the word "graag"  eeek.  *hides*  I know it's nowhere near the worst, but it's the first gr word and multiple letters g word I've heard.  Oh man if I tried to say that in front of a Dutchie they'd be laughing for a year.  Guess I have to go back to being an American now.

Health:
So I slept on and off from 4 am until 4pm yesterday.  We've been having record high temps for this time of year.  It's finally supposed to drop down now... to record lows possibly.  Ugh.  My body doesn't like when the weather jumps all over the place.  Especially not when record highs start early in the year.  Brain aliens in full effect.  Pain alien been around.  Exhaustion alien.  MS IS NOT HAPPY.  MOTHER NATURE MAKE UP YOUR MIND ABOUT THE WEATHER!  In fact if I get extra ranty or mess up lots of words, yeah, brain aliens around, sorry.

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Brian lives with me, he knows MS makes life less than pleasant.  And though Sarcoid never has really been an issue for me, having two chronic auto-immune diseases = one messed up immune system.  He's still got a slight cough but can't figure out why this cold has made me so ill.  I reminded him my body is not normal.  I guess it's a compliment that the only person who sees me daily and sees me a lot forgets I'm sick even if he sees some of the struggles daily.

That said, I went to bed thanks to Nyquil this morning and slept from about 10 - 3, went back to sleep, woke up at 5.  But now I'm just so weak and in so much pain, I think I'm gonna take some Nyquil again and sleep more.  This cold is nasty.

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